Breaking the Thalassemia Chain: A Critical Analysis of Tasikmalaya Regional Government Policies

Abstract

Objective: This study aims to analyse local government policies in breaking the chain of thalassemia disease. Methods: The research used a descriptive qualitative approach. The research subjects totalled 20 people, including the head of the Tasikmalaya City and Regency Health Office, the Head of the Office of the Ministry of Religion for the City and Regency of Tasikmalaya, the Head of the XII Regional Branch Office, and the Principal of a Senior High School. Research data collection using FGD (Focus Group Discussion) involves interview methods, directed group discussions, observation, and data analysis, including transcription and qualitative analysis using NVivo. Results: Data analysis obtained 25 codes, five categories and three themes, namely the first theme: Policy and Implementation to break the Thalassemia chain, the second theme: Challenges and obstacles faced in breaking the Thalassemia chain with the category of Challenges and barriers to policy implementation and the lack of supporting data on Thalassemia in related stakeholders, the third theme: Policy recommendations to break the Thalassemia chain in Tasikmalaya,  including expectations in the implementation of policies and efforts related to future policies. Conclusion: The study emphasizes the significance of regional policy commitment in achieving zero thalassemia by implementing premarital screening and education, as well as addressing primary issues that arise, including data limitations, stigma, and financial constraints.